Today was one of a long excruciating series of attempts to find some relief for my “butt pain”. I’ve had diagnoses like sciatic nerve demylenization, high hamstring tendenosis, ischial bursitis, performis syndrome and probably some other things I’m forgetting. I’ve had cortisone injected in my spine (where the sciatic nerve comes out), in my ischial bursa and in my hamstring, I’ve had physical therapy for all those diagnoses, and I’ve even had a electrodes implanted in my spine for a pain stimulator. So far nothing has worked.
The last doctor who worked on me suggested I look into getting an ischial bursectomy, but after calling 7 or 8 doctors in places like Texas, Kansas and New York City, all of whom whose websites said they do it, I got told over and over again that they don’t actually do it. I actually found one who said they do it and they booked me in for an appointment. And yeah, the front office person who booked me in had actually checked with another staff member to make sure they do it. This was in a fancy clinic in New York City just a block from Central Park. We had to fly down there and back. And when we finally saw the doctor, he said he doesn’t actually do that procedure, but he said he was going to suggest something less drastic. I think I surprised him when I asked him if he meant PRP (Platelet Rich Plasma?) or Prolotherapy. He was going to recommend PRP, and he confirmed the feeling I’d gotten from my research that while both are not FDA approved, many people find PRP helpful, whereas prolotherapy is pretty dubious.
The best thing about PRP is that I could have it done here in Rochester, and didn’t have to fly somewhere. Also, while it took a few weeks to get in to see the doctor who could do it (who was also the guy who’d shot cortisone in my hamstring), I got the appointment to have the procedure a week later (ie today).
So I had it today. First they took a bunch of blood – they tried to take 90ml but my blood kept coagulating so they had to stop at 78ml, after jabbing those giant 17G needles in me 3 times. They centrifuge it, and the centrifuge spits out a bag with plasma and platelets,and another bag of red blood cells. Sadly, they throw out the red blood cells, so there goes some more of my left over aerobic fitness.
Then it’s into the OR where they put you face down on a table and inject some lidocaine and then the platelets right into the hamstring. The lidocaine hurts like hell getting the needle in, then it feels just semi unpleasant as they inject it, and then it feels a different type of unpleasant when they inject the plasma.
Then it’s all over, until a few hours later when the lidocaine wears off and you realize your entire leg hurts like hell all along the hamstring, and you can’t take anything except Tylenol because the whole point of the procedure is to cause inflammation to start the healing process, so you can’t take any anti-inflammatory.
I’m really banking on this working, because my only remaining option that I know of after this is to keep searching for a doctor to do an ischial bursectomy. I found a video on YouTube that showed a doctor actually performing one of those, so maybe I’ll try to track that doctor down.
Pain sucks, fighting for treatment sucks harder, and the mental toll of this whole drawn out process is enormous. It’s only taking a pretty heavy dose of an anti-depressant and the love of family that gets me through the day and keeps me from giving up.